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About Enroll-HD
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Welcome to the Enroll-HD Portal, your access point to contribute to the largest database of clinical data for Huntington’s disease (HD). The overarching objective of Enroll-HD is to accelerate the development of therapeutics for HD by:
  • compiling uniform clinical data and biological samples to better understand the natural history of HD;
  • building a more comprehensive database – including biological samples – that will be accessible to any HD investigator worldwide;
  • facilitating clinical sub-studies and the development of validated HD assessment tools;
  • fostering good clinical care and improving health outcomes for both patients and families;
  • expediting recruitment into future global clinical trials of candidate therapeutics.
Enroll-HD Newsletter and Monthly News Bulletin:
The monthly News Bulletin and quarterly newsletter for research participants and site staff can be found on the Enroll-HD website.
Enroll-HD Study Status:
Participating sites: 170
Participating countries: 19
Total participants: 17586
May 15, 2018.
 
Enroll-HD News:
Enroll-HD 1.9 (Dec 2017)
    • CRF enhancements (HDCC, Cognitive, Motor, CSSRS, and CAG forms)
    • Integration of Protocol Violations into the EDC
    • Changes to Enroll-HD Reports and Reporting Tools
    • Visit Dashboard is now exportable
    • Changes to coding tools
    • Additional edit checks
    HDClarity 2.0 (Feb 2018)
    • Amended CAG cut-off values implemented
    • Amended TFC cut-off values implemented
    • Multiple enrolments possible for longitudinal collection

    [read more]
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